Riley is 15 and has a life-limiting condition called Recessive Dystrophic Epidermolysis Bullosa (RDEB) – Generalised severe, a rare genetic disorder that causes the skin to be extremely fragile, leading to painful blistering and wounds from even the slightest friction or trauma.Riley spends a lot of
Luke is 25 and lives with Duchenne Muscular Dystrophy, a progressive muscle-wasting condition that affects all his muscles, including his heart and lungs. He stopped walking at 13 and now relies fully on an electric wheelchair. He needs support with everything from getting in and out of bed to perso
Leo, who will be 4 in June, was diagnosed with stage 3 Burkitt’s lymphoma while in intensive care. He has been affected physically after being bed-bound and is struggling mentally due to the intensive treatment. He is currently receiving intensive chemotherapy as an inpatient for six months.Mum said
Percy is the best brother to his older sibling, Rory. He’s always there to help by fetching supplies, keeping Rory entertained, and watching over him. He even knows exactly what to do during a seizure, rushing to get oxygen and rescue medication like a real-life superhero. His mum shared:“Because Ro
My name is Eve, and I am 23 years old. Back in November of last year (a month after starting my new job at my local cancer hospital), I was diagnosed with lung cancer. It took a long time to get my diagnosis, but a few days after my 23rd birthday, I was hospitalised due to severe pneumonia. Finally,
Jacob, 11, helps care for his mum, who has had part of her small intestine removed and is now partially reliant on TPN, a nutrition solution. Jacob assists her in preparing her equipment for TPN and helps around the home. He also helps with the childcare of his youngest brother, who is 1.5 years old
Poppy, who will be 3 in June, has serious and complex cardiac conditions, meaning she has already had to have cardiac surgery at such a young age with more to come in the near future. She suffers from severe reflux, is gastrostomy-fed, and has hypermobility and joint laxity. She becomes very tired a
